|
Gender, n (%)
|
|
Female
|
739 (73.3)
|
543 (50.3)
|
1282 (61.4)
|
|
Male
|
265 (26.3)
|
536 (49.7)
|
801 (38.4)
|
|
Other or not specified
|
4 (0.4)
|
0 (0.0)
|
4 (0.2)
|
|
Age, mean (SD)
|
|
Years
|
56.3 (16.2)
|
57.8 (15.7)
|
57.0 (15.9)
|
|
Formal education, n (%)
|
|
Low a
|
185 (18.6)
|
216 (20.2)
|
401 (19.4)
|
|
Intermediate b
|
307 (30.8)
|
326 (39.5)
|
633 (30.7)
|
|
High c
|
236 (23.7)
|
234 (21.8)
|
470 (22.7)
|
|
Very high d
|
260 (26.1)
|
284 (26.6)
|
544 (26.3)
|
|
Other
|
8 (0.8)
|
9 (0.8)
|
17 (0.8)
|
|
Occupational status e, n (%)
|
|
(Self-)employed
|
442 (44.1)
|
476 (44.5)
|
918 (44.3)
|
|
Retired
|
433 (43.2)
|
470 (43.9)
|
903 (43.6)
|
|
Homemaker
|
61 (6.1)
|
44 (4.1)
|
105 (5.1)
|
|
Other f (< 5% each)
|
110 (11.0)
|
117 (10.9)
|
227 (11.0)
|
|
Setting, n (%)
|
|
Inpatient
|
89 (8.7)
|
93 (8.4)
|
182 (8.6)
|
|
Outpatient
|
934 (91.3)
|
1010 (91.6)
|
1944 (91.4)
|
|
Global health, mean (SD)
|
|
1 to 5, higher better
|
2.83 (0.85)
|
2.79 (0.85)
|
2.81 (0.85)
|
|
Distress, mean (SD)
|
|
0 to 10, higher more
|
5.67 (2.48)
|
5.43 (2.45)
|
5.55 (2.47)
|
|
Diagnosis, n (%)
|
|
Confirmed malignant neoplasm
|
759 (82.0)
|
826 (83.1)
|
1585 (82.6)
|
|
Suspected malignant neoplasm
|
11 (1.2)
|
9 (0.9)
|
20 (1.0)
|
|
In situ neoplasm or neoplasm of uncertain behavior
|
19 (2.1)
|
35 (3.5)
|
54 (2.8)
|
|
Benign neoplasm
|
30 (3.2)
|
11 (1.1)
|
41 (2.1)
|
|
Other diagnosis
|
107 (11.6)
|
113 (11.4)
|
220 (11.5)
|
|
Time since initial diagnosis, n (%)
|
|
1 year or less
|
393 (47.9)
|
390 (42.0)
|
783 (44.8)
|
|
1 to 5 years
|
279 (34.0)
|
370 (39.9)
|
649 (37.1)
|
|
more than 5 years
|
148 (18.0)
|
168 (18.1)
|
316 (18.1)
|
|
Reason for visit e, g, n (%)
|
|
Diagnostic investigation
|
235 (23.5)
|
214 (20.0)
|
449 (21.7)
|
|
Initial communication of the diagnosis
|
165 (16.6)
|
158 (14.9)
|
323 (15.7)
|
|
Treatment planning
|
278 (27.9)
|
249 (23.4)
|
527 (25.6)
|
|
Treatment
|
167 (16.8)
|
239 (22.5)
|
406 (19.7)
|
|
Treatment monitoring
|
254 (25.5)
|
338 (31.8)
|
592 (28.8)
|
|
Aftercare
|
205 (20.6)
|
216 (20.3)
|
421 (20.4)
|
|
Decision topic e, g, n (%)
|
|
Diagnostic procedures
|
314 (33.1)
|
296 (29.2)
|
610 (31.1)
|
|
Surgery
|
304 (32.0)
|
257 (25.3)
|
561 (28.6)
|
|
Chemotherapy
|
207 (21.8)
|
379 (37.3)
|
586 (29.8)
|
|
Radiation therapy
|
69 (7.3)
|
101 (10.0)
|
170 (8.7)
|
|
Other treatment
|
100 (10.5)
|
99 (9.8)
|
199 (10.1)
|
|
Surveyed in pandemic, n (%)
|
|
No
|
993 (100.0)
|
711 (66.7)
|
1704 (82.8)
|
|
Yes
|
0 (0.0)
|
355 (33.3)
|
355 (17.2)
|
