Table 5 Examples of studies reporting the impact of engaging patients in institutions
From: Engaging patients to improve quality of care: a systematic review
Reference | Level of engagement | Service type | Patient engagement outcome | Method/facilitator |
|---|---|---|---|---|
Acri et al. 2014 [65] | Consultative to co-design | Mental health | Shared/neutralized power | Equal voice of users and organization |
Barnes 2000 [75] | Co-design | Mental health | Culture change | Educational program |
Barnes and Wistow 1994 [40] | Consultative to co-design | Mental health | Culture change | Top-down approach from the local authority |
Buck 2004 [76] | Consultative to co-design | General health | Collaboration and mutual learning | Citizen advisory board |
Elwell 2014 [48] | Consultative to co-design | Acute care | Organizational impetus to change | User group meetings |
Frazier 2007 [42] | Co-design | Mental health | Collaboration between community and clinicians | Service model development |
Godfrey et al. 2013 [73] | Consultative to co-design | Acute care | Culture change | Program development |
Hopkins and Neimec 2006 [52] | Co-design | Home tx services | Shared/neutralized power | Users conducted research/interviews |
Iedema 2010 [39] | Co-design | Emergency services | Development of new competencies | Created deliberative space to share experiences |
Jones 2008 [62] | Consultative to co-design | Stroke services | Meaningful user participation | External facilitation |
Lord 1994 [63] | Co-design | Mental health | Culture change | Broadening power and control |
Macdonnell et al. 2013 [45] | Co-design | Pediatrics | Enhanced relationship between users and providers | Program development |
Mendenhall 2010 [77] | Consultative to co-design | Diabetes | Collaboration between community and providers | Talking circles, storytelling, giving users active role |
Pilgrim and Waldron 1998 [59] | Co-design | Mental health | Direct negotiations for change | Empowering users and external facilitation |
Reeve et al. 2015 [74] | Co-design | Primary care | Enhanced relationships between community and providers | Extensive community consultation |
Swarbrick 2006 [55] | Co-design | Mental health | Collaborative partnership | User training |
Thomson et al. 2015 [68] | Co-design | Multiple sclerosis | Mutual understanding | Program development |
Todd 2000 [47] | Co-design | Intellectual disability | Shift in thinking, collaboration, and participation | Higher proportion of users to providers, training, and clarity of roles |
Tollyfield 2014 [53] | Co-design | Acute care | Reconnection to core values of caring and compassion | Ongoing co-design meetings |
Tooke 2013 [49] | Consultative to co-design | Dementia | Enhanced communication between users and providers | Service user panels |
Walsh and Hostick 2005 [99] | Consultative to co-design | Mental health | User ownership | External facilitation |
Xie 2015 [54] | Co-design | Acute care | Commitment and mutual understanding | Familiar, experienced user representatives, establishing common ground and updating users on progress |