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Table 3 Quality of care outcomes and levels of engagement

From: Engaging patients to improve quality of care: a systematic review

Type of outcomes

Level of engagement

Studies

Co-design

Consultative to co-design

Education or tool development

 Information packages for patients, peers, and providers

Consultative to co-design, co-design

Pilgrim and Waldron 1998 [59], Factor 2002 [57]

Jones 2008 [62], Carlson and Rosenqvist 1990 [51], Buck 2004 [76], Ennis 2014 [70], Erwin 2016 [71]

 Service improvement surveys

Co-design, consultative to co-design

Hopkins and Neimiec 2006 [52], Brooks 2008 [64], Xie 2015 [54]

Tooke 2013 [49]

Informed policy or planning products

 Clinical care models

Consultative to co-design

 

Hall 2011 [94]

 Service/care strategies

Co-design

Brooks 2008 [64]

 

 User involvement models

Co-design, consultative to co-design

Coad 2008 [41]

MacNeill 2009 [97], Van Staa 2010 [66], Barnes and Wistow 1994 [40]

 Service policy implementation

Co-design

Todd 2000 [47]

 

 Plans or recommendations to improve service delivery and care

Co-design, consultative to co-design

Iedema 2010 [39]

Jones 2008 [62], Weinstein 2006 [46], Walsh and Hostick 2005 [99], Gibson 2005 [60], Buck 2004 [76], Cawston 2007 [69]

Enhanced care process or service delivery

 Extended opening hours

Co-design

Pilgrim and Waldron 1998 [59]

 

 Employment of a dedicated mental health advocate

Co-design

Pilgrim and Waldron 1998 [59]

 

 Improved/developed care facilities, services, programs, or intervention

Co-design, consultative to co-design

Ferreira-Pinto 1995 [58], Frazier 2007 [42], Barnes 2000 [75], Owens 2011 [56], Sawbrick 2006 [55],

Lord 1998 [63], Coad 2008 [41], Fitzgerald 2011 [78], Macdonnell 2013 [45], Bone 2013 [93], Berg 2015 [50], Thomson 2015 [68], Reeve 2015 [74], Tolleyfield 2014 [53], Murphy 2015 [44]

Fitzgerald 2011 [78], Jones, 2010 [96], Mendenhall 2010 [77], Walsh and Hostick 2005 [99], Carlson and Rosenqvist 1990 [51], Barnes and Wistow 1994 [40], Cawston 2007 [69], Rose 2003 [98], Godfrey 2013 [73], Blickem 2014 [92], Acri 2014 [65], Higgins 2016 [95], Lofters 2015 [43]

 Improved access to service

Co-design

Wistow and Barnes 1993 [61]

 

 Creation of an employment support unit

Co-design

Wistow and Barnes 1993 [61]

 

 Creation of new services

Co-design

Enriquez et al. 2010 [67]

 

Improved governance

 Patient representation on board

Co-design

Lord et al. 1998 [63]

 

 Auditing policy and frameworks

Co-design

Brooks 2008 [64]

 

 Commitment to improve services

Co-design

Wistow and Barnes 1993 [61]

 

 Organizational culture change

Co-design

Lord et al. 1998 [63]