Table 1 Current data holdings
Dataset | Description | Data custodian | Data holdings (at October 2013)* | Coding/classification | Cancer cohorts | Fact of death | Cause of death | Resource use/costs |
|---|---|---|---|---|---|---|---|---|
Patient information | ||||||||
  Client file | Demographic information and level of entitlement | DVA | April 1992–January 2010 | - |  | X |  |  |
  Residential aged care | Residence in aged care facility | DVA | July 2005–March 2011 | - |  |  |  |  |
Registries | ||||||||
  Central Cancer Registry | Cancer notifications in NSW | NSW MoH | January 1994–December 2009 | ICD-10 ICD-O-3 | X | x | X |  |
  Registry of Births, Deaths and Marriages (RBDM) | Deaths in NSW | NSW MoH | January 1994–December 2012 | - | x | x | x |  |
  Cause of death (part of RBDM) | Cause of death in NSW (coded by Australian Bureau of Statistics) | NSW MoH | January 1994–December 2007 | ICD-9 (94–98) ICD-10-AM (from 97) | x | x | x |  |
Health service and prescribed medicines datasets^ | ||||||||
  Repatriation Pharmaceutical Benefits Scheme | Pharmaceutical items in the Pharmaceutical Benefits Scheme (PBS) and extra items paid for by the DVA, dispensed anywhere in Australia | DVA | July 2004–January 2010 | R/PBS items mapped to ATC codes | x |  |  | X |
  DVA health services | Medical and allied health services in the Medicare Benefits Schedule (MBS) and extra items paid for by the DVA, delivered anywhere in Australia | DVA | July 2004–February 2011 | MBS items DVA items | x |  |  | X |
  Admitted Patients Data Collection | Inpatient separations from all public and private hospitals in NSW | NSW MoH | July 2000–December 2011 | ICD-10-AM | x | x | x | X |
  Emergency Department Data Collection | Emergency department visits to a subset of public hospitals in NSW | NSW MoH | January 2005–June 2012 | ICD-9, ICD-10 SNOMED CT |  |  |  | X |