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Table 1 Current data holdings

From: Resource use, costs and quality of end-of-life care: observations in a cohort of elderly Australian cancer decedents

Dataset Description Data custodian Data holdings (at October 2013)* Coding/classification Cancer cohorts Fact of death Cause of death Resource use/costs
Patient information
  Client file Demographic information and level of entitlement DVA April 1992–January 2010 -   X   
  Residential aged care Residence in aged care facility DVA July 2005–March 2011 -     
Registries
  Central Cancer Registry Cancer notifications in NSW NSW MoH January 1994–December 2009 ICD-10 ICD-O-3 X x X  
  Registry of Births, Deaths and Marriages (RBDM) Deaths in NSW NSW MoH January 1994–December 2012 - x x x  
  Cause of death (part of RBDM) Cause of death in NSW (coded by Australian Bureau of Statistics) NSW MoH January 1994–December 2007 ICD-9 (94–98) ICD-10-AM (from 97) x x x  
Health service and prescribed medicines datasets^
  Repatriation Pharmaceutical Benefits Scheme Pharmaceutical items in the Pharmaceutical Benefits Scheme (PBS) and extra items paid for by the DVA, dispensed anywhere in Australia DVA July 2004–January 2010 R/PBS items mapped to ATC codes x    X
  DVA health services Medical and allied health services in the Medicare Benefits Schedule (MBS) and extra items paid for by the DVA, delivered anywhere in Australia DVA July 2004–February 2011 MBS items DVA items x    X
  Admitted Patients Data Collection Inpatient separations from all public and private hospitals in NSW NSW MoH July 2000–December 2011 ICD-10-AM x x x X
  Emergency Department Data Collection Emergency department visits to a subset of public hospitals in NSW NSW MoH January 2005–June 2012 ICD-9, ICD-10 SNOMED CT     X
  1. *The program has ethical approval for annual data updates until 2015.
  2. ^Common years across all datasets are 2005–2009.
  3. X denotes primary data sources; x denotes additional data sources.
  4. ICD-10 International Statistical Classification of Diseases and Related Health Problems 10th Revision.
  5. ICD-O-3 International Classification of Diseases for Oncology, 3rd Edition.
  6. ICD-9 International Statistical Classification of Diseases and Related Health Problems 9th Revision.
  7. ICD-10-AM International Statistical Classification of Diseases and Related Health Problems, 10th Revision, Australian Modification.
  8. ATC Anatomical Therapeutic Chemical.
  9. SNOMED CT Systematized Nomenclature of Medicine—Clinical Terms.