Table 2 Primary and secondary outcomes and data sources
Outcomes | Definition | Data source |
|---|---|---|
Primary outcome | ||
 Any Test Completion | - Completion of any of the recommended surveillance tests (binary) | Ontario Health Insurance Program, Ontario Breast Screening Program, Gastrointestinal Endoscopy |
Secondary outcomes | ||
 Echocardiography | - Completion of echocardiography (binary) | Ontario Health Insurance Program |
 Colorectal cancer screening | - Completion of colorectal cancer screening (binary) | Ontario Health Insurance Program, Gastrointestinal Endoscopy |
 Breast cancer screening | - Completion of breast cancer screening (binary) | Ontario Health Insurance Program, Ontario Breast Screening Program |
 Up-to-date surveillance | - Completion of all the recommended surveillance tests (binary) | Ontario Health Insurance Program, Ontario Breast Screening Program, Gastrointestinal Endoscopy |
 Primary care visits | - Number of outpatient visits to primary care provider (count) | Ontario Health Insurance Program |
 Oncologist/aftercare visits | - Number of outpatient visits to oncologists and/or AfterCare Clinics (count) | Ontario Health Insurance Program [27, 28], Pediatric Oncology Group of Ontario Networked Information System, Corporate Provider Database, Client Agency Program Enrolment, Virtual rostering (using existing Ontario Health algorithms) |
 Hospitalizations | - Number of hospitalizations among survivors of childhood cancer (count) - Cause of hospitalization | Discharge Abstract Database |
 Emergency department visits | - Number of emergency department visits among survivors of childhood cancer (count) - Cause of emergency department visit | National Ambulatory Care Reporting System |
 Population characteristics | - Demographics, socioeconomic and ethno-racial status, rurality | Postal Code Conversion File, Ontario Marginalization Index, Registered Persons Database |
 Health services cost (Ontario Health [29]) | - Cost of health services including, but not limited to, day surgery, emergency department visits, oncology outpatient visits, hospital admissions, hospital-based mental health, physician fee-for-service claims, and outpatient laboratory services | National Ambulatory Care Reporting System [30], Discharge Abstract Database [31], Ontario Mental Health Reporting System [32], Ontario Health Insurance Program |