Table 2 Translation of key concepts through the studies
| Â | Paper 1 IBD | Paper 2 SHADE | Paper 3 MENTIP | Paper 4 IBS |
|---|---|---|---|---|
Prior information seeking | Yes – aligned to consultant | Minimal | Minimal | Yes -orientated to alternatives to medical perspective |
Timing of information provision important to self-management | Yes – early in illness career | Yes – before depression too severe | No, but early in illness career might impact on quality of life | No, but need for episodic 'just in time' information |
Role of professional important | Yes – to clarify and confirm existing relationship and decisions | Yes – as gateway to use of the information and legitimisation of condition and strategies | No, but gave medical permission to use the information | No, but ensured legitimisation and permission to use information to self-manage |
Engagement with and use of self-help materials | Yes – identified with others' experiences. Used to monitor, make management changes and raise awareness of condition with others. Also to fill gaps in knowledge. | Yes – identified with collective experiences of others, but severity impaired engagement. Used to monitor, make management changes and raise awareness of condition with others. 'Pick and mix' use and support whilst waiting for traditional therapy. | Yes, but linked to legitimisation of condition -led to enhanced control and ownership of knowledge. Used to support future decision-making and fill gaps in knowledge. | Yes – identified with collective experiences of others. 'Pick and mix' use. Refresher for self care action. |