Table 1 Characteristics of patient-mediated knowledge translation (PKT)
Type of engagementa | Type of supportb | Examples |
|---|---|---|
Inform Text-based information that provides patients with knowledge about their condition and an understanding of how to manage it | Condition and treatment | Information and evidence about the condition, prognosis, what to expect and its management |
Activities of daily living | Information and advice on how to undertake generic activities such as hygiene, dressing, preparing meals and transportation | |
Lifestyle advice | Information and guidance on lifestyle behaviours that support disease management | |
Activate Text-based prompts or tools to prompt action for actively managing the condition and enhancing quality of life | Decision aids | Informational resources that help people consider the benefits and harms of treatment options |
Lifestyle monitoring | Reminders, diaries or other prompts to support adherence to medication or recommended lifestyle behaviours | |
Action plans for condition | Guidance specific to medical condition, providing signs of worsening condition, how to self-adjust treatment and response if deterioration continues | |
Physiological monitoring | Self-evaluation tools to log and monitor physiological measures for personal assessment and to share with clinicians | |
Psychological strategies | Mechanisms for problem-solving, goal-setting, reframing and relaxation | |
Collaborate Text-based links, prompts or tools that lead to interaction and engagement | Communication with providers | Guidance and prompts to facilitate communication with health care professionals |
Available resources | Links to or contact details for organizations that offer information, psycho-social support or financial aid | |
Social support | Links to or contact details for organizations that offer support, mentoring or socializing |